by Rosemarie Garland-Thomson
about Rosemarie Garland-Thomson
Rosemarie Garland-Thomson is a Hastings Center Fellow and senior advisor and a professor emerita of English and bioethics at Emory University. She is the author of Staring: How We Look.
Eugenics
“Eugenics” is the modern scientific term that emerged in the late nineteenth-century and early twentieth-century West to name the contemporary rationales and actions with which modern nation-states shaped the membership of their citizenry. The word “eugenics” itself was coined in 1883 by Sir Francis Galton, a prominent English anthropologist and statistician. Derived from the Greek to describe the pursuit of the “well born,” eugenics was promoted as the new science of improving the human race through selective breeding. Galton’s theories about creating a better future with a better population captivated American scientists in the industrial age. Yet the ideology and practice of controlling who reproduces, how they reproduce, and what they reproduce in the interest of shaping the composition of a particular population group long predate the industrial age. All communities—from tribal kinship groups to modern nation-states—control the composition of their population through practices that encourage valued members to flourish and discourage less valued members of the group from thriving. Social orders create structures to control which individuals are included in or excluded from group membership, as well as the traits that appear in the individuals who make up the sanctioned population. In this way, a collective social body takes...
Disability
Nowhere is the concept of _health humanities_ more filled with contradictions than when it considers the human variations we call disabilities. While we might think of _disability_ as the antithesis or lack of ability, the concept is, in fact, a historical invention born in the nineteenth century. There were and are other ways of thinking about disability, and when it comes to conceiving of disability, the goals and practices of _health_ and those of the _humanities_ are, at times, divergent if not conflicting. The conflict is generative. The aim of medical science is to convert human variations it classifies as disease, disability, or defect into a state it considers _health_. To do this, medical science sorts human variations into the categories of pathology or normalcy. Disease, disability, and defect are abstract categorical descriptions, interpretive taxonomies or templates fit over distinctive individuals to develop a clinical treatment plan. Modern Western medicine does this by pathologizing human differences (Hacking 1990; L. Davis 1995; Baynton 2016; Garland-Thomson 1996; Kafer 2013). Over the last twenty years, the humanities have offered another way of understanding disability. One significant way of understanding disability differently through the humanities has been to identify and explicate cultural narratives of...