by Maya Sabatello

about Maya Sabatello

Maya Sabatello is a Postdoctoral Research Fellow at Columbia University’s Center on Research of Ethical, Legal, and Social Implications of Psychiatric, Neurologic and Behavioral Genetics. A lawyer with a PhD in political science, she previously litigated cases of medical malpractice and has worked as a legal adviser to national and international nongovernmental organizations to promote health-related human rights. As a Permanent Representative for a nongovernmental organization at the United Nations, she participated in the drafting of the Convention on the Rights of Persons with Disabilities.

Rights

The concept of rights is central to disability studies: it reflects the clearest recognition of persons with disabilities as subjects under the law who are empowered to demand, on an equal basis with others, what they are entitled to as an integral part of the human race. This understanding marks a stark shift-and a crucial development-from the historical conceptualization of persons with disabilities as objects who lack reason and ability to make decisions, and hence who cannot be bearers of rights. Rights are the fundamental normative principles of freedom or entitlement stipulating what one is allowed to perform or is owed by others. Rights exist in both national and international law, and they form the basis of an increasingly accepted international language that addresses issues of dignity, needs, and justice. In modern times, individuals are assumed to possess rights simply by virtue of being human. These rights are inalienable and universal. They apply equally to all across the world, and they cannot be withheld or withdrawn by states, governments, or private actors. Nonetheless, persons with disabilities have been historically excluded from “rights talk.” With the growing influence of an international disability rights movement, efforts to remedy this wrong have in...